Tag Archives: dementia

My Parent’s 58th Wedding Anniversary

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Today is my parent’s 58th wedding anniversary. They’ve stuck with each other since they were high school sweetheartsCouples in Baltimore MD of the 1940s.  When they married at age 20 (their birthdays are only a month apart!) they had no idea where life would take them.  My father was a “junior” something or other (pre-executive?) at a large oil company.  Mom was at Towson State studying to be a librarian. No accounting for bolts of lightening, but Dad got one – he was called to the ministry.  He’s often said the only way you know it’s a true call is to run away as much as you canPeeking Over Fence – and if it’s real, anyway you go brings you right back to it. (I ken this!!)

Well, his call changed their lives. He had to go to college before he could go to seminary.  They moved to the small Pennsylvania town where Gettysburg College and the Lutheran seminary are both located.  Dad finished his BA in 3 years even with a rigorous academic load.Writing … Mom supported them by working – surprise – in the town library.Books Unfortunately, she never got a chance to go back to school and finish her degree.  She became “the pastor’s wife”. Dad went on to the Seminary, which definitely wasn’t a piece of cake.  Luckily he’s a brilliant scholar – the academics weren’t much of a problem.

As the seminarians progress, though, it becomes clear that this isn’t a “job”, it’s a life.  A life of service. A becoming, not a doing. A Pastor is what you are, not what you do. (Like a true doctor, but that’s several other blog entries…). Mom and Dad saw that this was their life – especially during the year of internship living out in southern Maryland with cowsMad Cow in their backyard! They must have been OK with it, ’cause that’s what they did. Had their first baby 10 years after they got married (me) and my bro a couple years later.  (I really didn’t mean to make Mom drop him on his head!!Shy Whistler

One part of the Ministry is moving.  Dad was somewhat of a trouble shooter – his strength was going into congregations that had had some extremely divisive events (like the pastor who wife-swapped with another couple in the church)Eyes Poppin That meant we moved. Not a lot compared to military families, but the longest I lived anywhere was 7 years.  OK, so I only lived 5 different places.  Sometimes it was a relief to move!!

The last church Dad had was in south Florida.  They had looked there because they thought it would be good for my Mom’s arthritis and headaches.  Kinda worked.  Arthritis better; HAs? They lived a mile from the ocean, and most of the time the breeze made her face hurt.  She’s not one for much complaining. I think there were definitely times she should have complained more! They lived there for 27 years – Dad “retired” there, and then they were able to travel more. Pilot They started right after I finished college and Mom dragged him around the globe for years.  He even got over his fear of flying (mostly, anyhow) Eyebrow

The last move they’ve made is to my house. My Mother’s health has been failing steadily over the last 15 years, and it became quite clear to everyone in the family (except my fatherBlind) that she had a significant dementia – and that he was having a harder and harder time taking care of her.  A couple of falls and a stroke (hers not his) finally got through to him, and he agreed to move up here.  Of course, that meant quite a bit of remodeling to give them living quarters – and ones that were suitable for a totally handicapped wheel-chair bound personWheel Chair. It was clear to me that Mom was headed that way!

The task of designing their space, and most importantly, the bathroom, fell to me.  I have to admit, I did a great job.  I was also blessed to have the most wonderful contractor in the world.  We knew Joe was the one when, on his first visit to the house, my very shy, man avoident dog Doggy LickStar walked right up to him and put her head into his lap.  He was hired!Thumbs Up One of the key features I used to make their space more efficient and accessible was pocket doors. On their sitting room, I used lovely cherry french pocket doors. One place, we had to build a false wall for the door because it was a supporting wall. The bathroom is compact but beautiful.  I got the perfect roll-in shower unit (from a lovely Mom and Pop company), ADA-approved light fixtures, grab bars, roll-under  and accessible sink.  I even found a mirror that tilted down for someone in a wheelchair!

They moved in last spring.  The past year 15 months have been very stressful. DoofusIt’s not easy having your whole life and family routine Babysittingcompletely turned upside-down. Dad still hasn’t accepted how sick Mom is, and he refuses to leave her long enough to actually get a life – which was part of the point of moving up here.  We do have wonderful Home Helpers who come in to clean, cook,Cooking Dinner bathe, and help with changing her undergarments (incontinence sucks).  I’ve managed to simmer down some of the frustration-based yelling T-Rex 2and fussing (all on Dad’s part) Mom is pretty happy and even tempered – gotten sassy too!   Still, Dad fusses about the way we’re raising Wonderboy and how much stuff Hubby and kid leave laying around.  Like I can do anything about that!

So today is their 58th wedding anniversary. Mom didn’t remember how long they’d been married; looked surprised when I said 58 years.  Barbara our home helper angel, made a remark about sticking with Dad for all that time.  Mom said “maybe it’s time to get rid of him!”   Was a funny! Running In FieldThey love each other very much.  Mom acceptsHappy, as she’s always done, the ups and downs, the indignity of having to wear diapers, and other hardships.  Dad is scared.  That she’ll fall, that she’ll die, that she’ll …what? Fear is a horrible way to live. Dad is mostly perfectly healthy (how many 78 yos do you know who only take ONE prescription medication?Pill Bottle??) and it’s gonna be really hard on him when she dies.  Now, if he’d only get a life…

Happy AnniversaryHappy Anniversary Mom and Dad!!Bride & Groom

Mom, Dad and 3 of 5 grandkids!

Mom, Dad and 3 of 5 grandkids!(Wonderboy is the long-haired goofy looking one...)

Wasn’t this supposed to be my week off??!!??

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Yeah, that’s right, this WAS supposed to be a week off… but I must “be off” to think that fate, karma, and the power of the vortex I live in would allow that to happen!!

Last week, I sarcastically commented on the odds of me actually getting some me time… The last time I tried to take off an entire week, my Mom got sick, and I spent most of the week keeping her out of the hospital.

And know what? Sunday night at 10:30, I was at the pharmacy Nice pharmacist! getting antibiotics. For Mom. At least we caught it sooner this time. Today, she’s much clearer – she hasn’t been talking about the blue fish in the aquarium Dorie??or the doll on the back of the chair…Neither of which exist any where except in her mind.

With all this swirling around, I’ve been dropping more balls than usual.

An example…    I sent this email this morning in response to an inquiry from another OnlineAuction seller:

M – I see what happened now – I went through and paid all the google checkout invoices, skipped yours because it was paypal (meaning to go back and pay it when I finished google) and then, of course, got distracted… Duh If I don’t pay within 3 days, something ain’t right! If I buy something from you again, and I haven’t paid or contacted you within 3 days after you send an invoice – please resend it!bug me!

The chaos in my house is absolutely overwhelming right now NOW! my mother has dementia and she’s sick (again), and my father is frustrated and deaf, and doesn’t realize he’s yelling at her and he has the TV is so loud LOUD!you can hear it in Nevada…and the kid’s meds have worn off by 6 pm, and he’s running around doing the Egyptian Funky Chicken funkOlympic Swimmer dance Dance!in front of the TV so Dad yells at him too…. A patient calls me calls me!and I can’t go outside to escape the noise because it’s raining so hard it’s roaring… so to hear her, I end up crouching behind the island in the kitchen Shark!to shut out the noise of Dad yelling at Mom because she’s not strong enough to stand up the way she needs to…(He’s not mean, just scared) …. And then my husband walks in and wants me to immediately drop everything and listen to what he’s done that day.Isn't this what I do at work??. (isn’t this what I do for a living??)… and this is all after I’ve been at work for until 8 pm…. Dinner? Huh? The Papa John’s Guy at the door again? Yech....So, for me, another dinner of Progresso soup (can’t do sodium in pizza – imagine the Goodyear Blimp with boobs!!)..Blimps Fly!!.We do have a wonderful home helper, Barbara(Fairy Godmother!) who’s here every night but she just takes the edge off!

And that was just last night!!! The OnlineAuction Wednesday Wave was the sanest part of my day yesterday!!!!!!
Anyhow, you’re paid!Yes!
Dragonmum

Now I’m having a “hang out on the couch because the barometric pressure is doing the cha-cha” day. Although Fay is pretty far away, it’s causing the weather here to be unstable. The barometer in my head NOT LIKE IT!! (Hush, barometer, stop shouting – I have a headache!!)

We are lucky, though. My brother and his family live in St Augustine. They are currently getting pounded by the rainRainy and wind Windyon the northwest side of the storm. They haven’t had a direct hit of anything in the 20 years they’ve lived in FL. I’m sending lots of good thoughts and wishes their way – I just hope they evacuated instead of sitting and waiting.

This storm is another one of those signs – like I told my parents in 2005 when 3 storms sliced across the state right across their home – It’s a sign that either that God doesn’t like your landscaping or humans aren’t supposed to live in Florida!! (for them, I voted for the “not live in FL” option – they live with me now!) They were very very lucky they were in the right place that year – Not in Florida! I kept emailing Dad in the UK satellite photos of the monster storms moving in right (literally!) Rain Cloudover their house. At some point it began to sink in. I don’t think it was until they got home and found that the land had changed from green to blue (tarps).

All the chaos has also put a damper on my online listing. I did get a few items up. Most are yarn (yes!), most are vintage yarn!!

**Addendum: I’m no longer selling on OLA. please visit my Bonanzle storeDragonmum’s Vintage Valuables

The most exciting thing I’ve done this week is to list my 1st charity auction.

I found a Designs by Lucinda House Pin, and am auctioning it for our won buddhist meditation temple. We are raising funds for a dharma room expansion – which will provide more meditation space, and extra room to provide hospitality and shelter to those who need it.

Well, this time next week, I’ll be on my third day of more patients, and once again I will be dealing with
monkeypox